text We the scientists : how a daring team of parents and doctors forged a new path for medicine
- Summary
- "Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic c... Read more
- Contents
- Introduction: We the scientists -- The here and now -- A different fear -- The fishing expedition -- The catalysts -- The opera singer -- The broad jump -- New hit -- Reverberations -- Persuasion -- The greater good -- Complications -- The communi... Read more
- Format
- text
- Description
- xxx, 222 pages ; 22 cm
- Publisher
- Riverhead Books 2023
| Library | Location | Status |
|---|---|---|
| Woodmere (Main Branch) | 618.92 MAR in Adult Non-fiction | Available |
| Library | Location | Status |
|---|---|---|
| TADL-WOOD | 618.92 MAR in Adult Non-fiction | Available |
Niemann-Pick diseases Treatment
Rare diseases Patients
Genetic disorders in children Patients Family relationships
Parents of children with disabilities
Rare Diseases therapy
Niemann-Pick Disease, Type C therapy
Community-Based Participatory Research
Parent-Child Relations
Parents
Disabled Children
Parents of children with disabilities
Rare diseases Patients
Available Copies
| Library | Location | Status |
|---|---|---|
| Woodmere (Main Branch) | 618.92 MAR in Adult Non-fiction | Available |
All Copies (Show)
Genres (Show)
Subjects (Show)
chat loading...