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Craniofacial dysostosis Patients Biography Craniofacial dysostosis Patients Biography Juvenile literature Health Henley, Ariel 1991- Health Juvenile literature Henley, Ariel 1992- Health People with disabilities People with disabilities United States Biography Juvenile literature People with disabilities United States Social conditions Juvenile literatureFilter By Authors
Henley, ArielFilter By Subjects
Craniofacial dysostosis Patients Biography Craniofacial dysostosis Patients Biography Juvenile literature Health Henley, Ariel 1991- Health Juvenile literature Henley, Ariel 1992- Health People with disabilities People with disabilities United States Biography Juvenile literature People with disabilities United States Social conditions Juvenile literatureFilter By Authors
Henley, ArielHenley, Ariel
Summary: At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the...
Format: text
Publisher / Publication Date: Farrar Straus Giroux 2021
Copies Available at Woodmere
1 available in Young Adult Non-fiction, Call number: YA 921 HENchat loading...