Henley, Ariel

Summary: At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the...

Format: text

Publisher / Publication Date: Farrar Straus Giroux 2021

Copies Available at Woodmere

1 available in Young Adult Non-fiction, Call number: YA 921 HEN